Resources

Sibling Leadership Network

http://www.siblingleadership.org/

The Sibling Leadership Network (SLN) is a national nonprofit organization that provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.

sibsNY

http://www.sibsny.org/

SibsNY is a volunteer organization dedicated to providing the siblings of individuals with intellectual, developmental and learning disabilities with information and support. SibsNY is the NY state chapter of the national SLN.

Sibling Support Project

http://www.siblingsupport.org/

The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.

SibNet on Facebook

https://www.facebook.com/groups/SibNet/

SibNet is an interactive, closed group of adult siblings of people who have disabilities. SibNet siblings share concerns, challenges, joys, insights, information, resources, and strategies.

The Arc’s Center for Future Planning

https://futureplanning.thearc.org/

The Arc’s Center for Future Planning supports and encourages adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future. The website provides reliable information and assistance to families and individuals with I/DD on areas such as person-centered planning, decision-making, housing options, financial planning, establishing daily activities, and making social connections.

Sibling Advocacy Toolkit

http://siblingleadership.org/wp-content/uploads/2014/04/SLN-Advocacy-Toolkit-final.pdf

This Advocacy Toolkit is designed to make use of siblings’ unique roles for advocacy policy. Aimed at providing siblings with useful information, strategies and tools, this toolkit demonstrates that advocacy consists of multiple layers from connecting with other siblings to visiting with legislators.

Quality Mall - Sibling Department

http://www.qualitymall.org/directory/dept1.asp?deptid=91

Quality Mall provides free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports. The Sibling Department has resources specific to siblings of people with disabilities and is especially useful for siblings.

Family Support Research & Training Center

https://fsrtc.ahslabs.uic.edu/

The FSRTC is a collaboration of researchers and organizations who are focused on synthesizing and generating knowledge about the needs and experiences of families who provide support to children and adults with disabilities across the life course. 

Sibling Experiences

https://www.youtube.com/watch?v=Pc1CUf2DgOQ

Learn more about the sibling experience from the voices of adult siblings

Liz's Sibling Stance

https://www.youtube.com/watch?v=S9VdY_oC7No

Learn more about the sibling experience from a self-advocate

Sibshops

http://www.siblingsupport.org/about-sibshops/find-a-sibshop-near-you

Sibshops are lively peer support and educational programs where school-age brothers and sisters meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, and learn something about the services their brothers and sister receive. Use this link to find a Sibshop near you.

Sibteen

https://www.siblingsupport.org/connect-with-others-sibs/meeting_other_sibs_online/sibteen

Sibteen is a place where teenage sibs of people with disabilities can connect with others who get it. It’s a fun and thoughtful group where members share unique concerns, joys, frustrations, and information with others who truly understand!

Sibling Caregivers Brief

http://fsrtc.ahslabs.uic.edu/wp-content/uploads/sites/9/2016/11/FSRTC-Data-Brief_1_2016-3-3.pdf

Sibling Disability Advocacy

http://ahs.uic.edu/media/uicedu/ahs/documents/dhd/publications/accessibleresearchbriefs/Burke,et,al,Siblings.pdf

SLN Adult Siblings Research Brief

http://siblingleadership.org/wp-content/uploads/2010/07/SLN-Adult-research-brief-final.pdf

SLN Young Siblings Research Brief

http://siblingleadership.org/wp-content/uploads/2010/07/SLN-Young-Siblings-research-brief-final.pdf

State of the States in Developmental Disabilities: Siblings of Individuals with Intellectual/Developmental Disabilities

http://siblingleadership.org/wp-content/uploads/2013/08/SOS-SLN-SiblingsBrief-FINAL.pdf

Frequently Asked Questions regarding the Family Medical Leave Act and Siblings

http://siblingleadership.org/wp-content/uploads/2015/08/FMLA-Fact-Sheet.pdf

Affordable Care Act Implementation Webinar

https://www.aucd.org/template/event.cfm?event_id=4205&id=740&parent=740

Medicaid Regulation Changes

http://siblingleadership.org/policy-advocacy/medicaid-regulation-changes/

How to Be a Sister: A Love Story with a Twist

http://astore.amazon.com/thesibsuppro-20/detail/1615190163

by Eileen Garvin

The Sibling Slam Book: What it’s Really Like to Have a Brother or Sister with Special Needs

https://www.amazon.com/Sibling-Slam-Book-Brother-Special/dp/1890627526

By Don Meyer

The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities 

http://astore.amazon.com/thesibsuppro-20/detail/1606130137

Edited by Don Meyer & Emily Holl

Thicker than Water

https://www.amazon.com/Thicker-Than-Water-Siblings-Disabilities/dp/1890627917

By Don Meyer

Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs

https://www.amazon.com/Views-Our-Shoes-Growing-Brother/dp/0933149980

By Don Meyer

Riding the Bus with My Sister

https://www.amazon.com/Riding-Bus-Sister-Rachel-Simon/dp/1455526169

By Rachel Simon

Locate a Sibshop in NY

https://www.siblingsupport.org/about-sibshops/find-a-sibshop-near-you#b_start=0&c1=United+States&c7=NY

NY Sibling Survey Executive Summary

http://siblingresources.org/downloads/SiblingExecutiveSummary.pdf

NY Siblings Resource Document

http://siblingresources.org/downloads/NYSiblingsResourcePage.pdf

Webinar Participant Guide

http://siblingresources.org/downloads/webex_2016.pdf

Locate a Sibshop in NY

https://www.siblingsupport.org/about-sibshops/find-a-sibshop-near-you#b_start=0&c1=United+States&c7=NY

Sibshops provide young brothers and sisters with peer support and information in a lively and recreational setting.

sibsNY Meetups

https://www.meetup.com/sibsNY/

sibsNY is a group dedicated to connecting the brothers and sisters of people with disabilities. Our members share fun activities and social outings, as well as information and support that helps them meet the challenges of having a sibling with a disability. Located in NYC, we are seeking to expand sibsNY by fostering the development of local sibling groups and outings in communities throughout our large state. If you would like to connect with other siblings of people with disabilities in your area, join us!

Sibnet

There are 3 different online networks for siblings who want to connect and network with other siblings from the comfort of their own home at any time. These online communities of siblings are interactive, closed groups of adult siblings of siblings who share concerns, challenges, joys, insights, information, resources, and strategies. Sibnet on Facebook for adult siblings:

Sibnet on Facebook for adult siblings:
https://www.facebook.com/groups/SibNet/

Sib20 on Facebook for siblings in their 20’s:
https://www.facebook.com/groups/Sib20/

SibTeen on Facebook for teen siblings:
https://www.facebook.com/groups/SibTeen/